Having an illness like Fibromyalgia you have to find comfort in anything you can. Becuase you never know when your going to wake up one morning but not be able to get out of bed 5 days later. You never know when a flare is gonna come or when you just feeling really really crappy and you don't know when you will feel better. A lot of people even the people closest to you don't understand what its like to have chronic pain. So for me when those days come I look for the things that bring me comfort the most.
MY PIG
My most comforting item is my pig. The pig doesnt have a name he is just known as my pig. This pig has gone threw just about everything with me. And it means the world to me because my dad bought it for me. When I was 16 I had surgery to have lumps on my breast removed. When I woke up from surgery ( which was one of the hardest surgeries to wake up to and I have had about 36 so I have some experience with waking up from surgery! Boobie ones are not fun!) But when I woke up and calmed down from being in so much pain I noticed that this pig was sitting on my stomach. I was like uhm... this is random? And then my dad said that he got it for me while I was in surgery. And it has been with me at every surgery at every hospital stay right next to me in bed I get so much comfort from this little pink pig. Anytime I am in the hospital the first thing I tell my family to bring me is my pink pig. In this picture I was in the ER for what we thought was meningitas ( again ) and I was still sedated from having my spinal tap. So anytime I am in the ER for something really serious like in the picture its with me! One time I was in the hospital for about a week and they transfered me to a different hospital I left my pig there. I freaked out. My doctor was nice enough to go to the lost and found during his rounds and get it for me and bring it to the new hospital I Was at. I absolutely love my pig. This is my number one comfort item!
SICK MOVIES
I have what my sisters and I call them " sick movies" We all have a couple of movies that we like to watch when we are feeling sick. Two of my favorites are " The Devil Wears Prada" and " The Divine Secrets Of The Ya-Ya Sisterhood" and last but certainly not least " Breakfast at Tiffanys"
My mom bought me The Devil Wears Prada when I was hospitalized for pain management right before I had surgery for yet another bout of endometriosis. I loved it. I cant even tell you how many times I watched it. I never watch it if Im not sick but when I am its one of my favorites and it keeps me calm. I also like it because its one that is just basically all talking so its quiet enough that I can fall asleep too. ( Except there is one scene where her cell phone rings 15 times yes.. I have counted 15 times. And for some reason the ring is super load and always wakes me up if I am asleep) Anyway this is one of my all time favorite sick movies.
Another one is Divine Secrests Of The Ya-Ya Sisterhood. I knew my family had this movie for a super long time and it just never looked interesting to me. But I had had surgery but the next day I woke up with what we think was the swine flu. ( My sisters and I call it the time I had the ebola virus it was so bad. ) And I was bed ridden for WEEKS.. which means I had watched pretty much every movie that we had. I had friends bring over movies for me to watch one of my sisters has over like 600 dvd's and she would bring me a new stack every day before work for me to watch. I was in need of new movies. So I decided to go threw all my familys movies and pick out ones that I had never seen before. The first one I watched was this one. I absolutely LOVE this movie. Not only is it one of my sick movies but its one of my top 5 favorite movies! It was so good I was like really sad when it ended haha I think I even watched it twice in a row. If anyone needs a new movie to watch I would suggest this one! It is another one that is all quiet and mostly talking and has such a good story line and has some really funny one liners in it. Love love love this movie! It was really good and had me interested the moment the movie started and it kept my mind off of how I thought I litteraly going to die becuase of how sick I was! Also... saved the best for last" BREAKFAST AT TIFFANYS"!!!!!!!!! Ok if you have seen this movie you know why I dont even need to explain why its one of my favorites becuase its AMAZING! Who doesnt love Holly Golighty right? This movie is amazing and also one of my top 5... even my top 3 favorites movies. Add this to your " sick movie" list!
I know a lot of people have comfort foods but when I am sick and in a bad flare or recovering from surgery or whatever it is a struggle to get me to eat or drink anything. In fact whenever I am sick I call my dad the fluid nazi because he comes in like every hour with a huge glass of water or whatever and stands there and make sure I drink it all and then comes back in an hour and makes me drink another one! Now becuase I am living in a different state whenever I am sick and talk to him his first question is " are you drinking plenty of fluids?" Haha I love my dad so much. And he is a hero to me. He too lives with chronic pain and has teached me how to handle it. I remember when I was 15 and I first got sick my dad and I stayed up all night long talking. He told me a lot about his childhood that I had never heard before, and how he knows what its like living with chronic pain, and how proud he was of me for handling so much pain and change in my life. That is a memory of my dad and I that I will always cherish.
I dont know about you but when I am sick or hurting or in a flare whatever... I dont want to eat. Anything. At all. I lose my appetite the pain is so bad that I don't feel anything else but pain so I dont ever feel hungry or crave anything I just dont want to eat period. My mom has had times where she has had to force me to eat. If theres one thing that I want to eat or drink when I am sick its usually gatorade. But I dehydrate SO easily. I cant even tell you the amount of times I have been hospitalised with dehydration. It only takes about 2 days of not eating or drinking anything that I am just done. I have muscle cramps, I have no energy whatsoever, I feel nauseated, I have no color in my skin my eyes are just dead inside. There has been twice where I was so dehydrated that my patasium got so low that my heart started to freak out. My heart rate was out of control high I felt like I was having a heart attack I was throwing up so bad You could like see my pulse in this huge vain in my neck I was put in an ambulance and taken to another hospital to be admitted. So Yeah Its a battle between not wanting anything to do with food or fluids but also trying to stay hydrated enough. Deffinitly a battle!
MY SISTERS
My two of THE MOST IMPORTANT people in my life. I can't even tell you how much I love my sisters. The things that we have gone threw together and the things I have gone threw they I know I wouldnt have made it out of without them. My sisters are the two most amazing sisters anyone could ask for. I really got lucky to have my sisters also be my two best friends. The top picture is one of my younger sister Madi and I and then bottom picture is of my older sister Meagen and I. These two help me get threw everything. We all love eachother so much but whats so great about them is that they help me in two different ways. Madi can get me to laugh even when all I feel like doing is crying. She has such a quick wit and is just the most hilarious person I have ever known. She is a mom so I have noticed that she is very protective of the people she loves. I know that she will always have my back and will probably kick your ass litteral... also verbally if you ever did anything to hurt me. She is amazing and someone I want by my side forever. Meagen is more of the nurturing type. She has been by my side numerous times while I was sick. She has taken care of me so many times I have lost count. About a year ago I was going threw something really major, I ended up in the hospital and usually my mom is the one that stays with me but she moved to another state so Meagen took her place. She made me feel so comfortable the entire week I was there. She never left my side she slept in the uncomfortable hospital chair every night next to me. She always knew what I needed and when I was feeling the worst. She has been a huge support system in my life I know that she will be on my side no matter what and will always be there to take care of me no matter how old we are. She is my person.
MY DOG FENWAY
My dog Fenway is deffinitly a huge comfort to me! He is always there when I need some cuddeling or just someone to listen ( No im not crazy I dont expect him to talk to back) I love him so much. We were ment to be together. He deffinitly keeps me on my toes but also gives me a reason to get up in the morning. I take him on 2 walks a day which is good for me becuase it makes me get out and get some excercise. He is such a cute little pup. Fenway is a chug ( Pug/chihuawa mix) I call him my little Love Chug! I love Fenway! I truly believe that animals know when something is wrong with you the can sence when something is wrong if your sick anything like that. I would recommend any one with any type of chonic illness to get an animal! They are just amazing!!!! I love Fenway so much I don't know what I would do without him!
What are some of your comfort items? Leave me a comment and let me know! Also if you have Facebook you can go LIKE mine and my fibro friend Rachelle and let us know what your comfort items are! The page is called Misses and Ms. Diagnosed
Thanks for reading! And keep fighting!
1 comment:
oi eu sou do brasil desculpa mas não entendi sua história mas se colocar o tradutor seria mais facil!
beijos anna.
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